Thanks for publishing Article about Polycystic Ovary Syndrome (PCOS) by Charlie Binkhhurst-Cuff (I found to have PCOS – and soon drowned in misfortune, 22 June). It lives in my experience of diagnosing and disappointment with complete lack of support. I first tried my teens and told my blood test normal. I’m restended to 34 when I went to my GP about gaining weight and struggle with fatigue. When I confirm that I warned about health issues, and told the best thing I could do, even if it was very hard, and returned when I was struggling to conceive.
Charlie is right: the amount of time and energy I have to try to understand how healthy is a big channel. Especially moving through the masses of misinformation. I took two years and great hard work to understand a food plan and workout working for me. It’s hard and lonely trying to navigate it myself.
Despite warnings, I was lucky and easy to be pregnant. Unfortunately, my maternity care is driven by a lack of understanding PCOS. I know that I was more dangerous to miscarriage, gestational diabetes and pre-eclampsia, but my midwife removed my concerns about everything but diabetes. I have further test for diabetes early in my pregnancy, grateful negative and another booked in 28 weeks. But I struggle with anxiety, as I am more risky without support or advice. Being expelled as worried about the absence of help.
the NHS should give better understanding and support for people with PCOS. I hope it will improve immediately. I hate, if I have a daughter, so that he has the same experience I have.
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